Milton Doug Hiteshew Memorial Scholarship Program
Application Deadline: April 30, 2022.
Patient Financial Assistance Program
The Hemophilia Foundation of Maryland (HFM) Patient Financial Assistance Program is part of HFM’s continuing effort to improve the quality of life for individuals and families affected by bleeding disorders. This program provides funds to eligible individuals and families who need assistance with:
Expenses incurred in the care and treatment of a bleeding disorder, and/or
Basic living expenses emergencies.
Note: This program is intended to help individuals and families who have exhausted all other sources of assistance and for whom no other funds are available.
Additional Patient Assistance Resources: (Contact HFM for more information)
HFA Helping Hands (Please reach out to HFM for a referral)
Colburn Keenan Foundation (Please reach out to HFM for a referral letter)
PSI Inc. (Insurance/Copayment Assistance)
MedicAlert services ensure that emergency responders and hospital staff get your up-to-date medical information the moment they need it so they can make informed decisions about your treatment and care. MedicAlert has several types of memberships. Please visit www.medicalert.org for more information.
HFM will help cover the cost of MedicAlert services up to $50. To receive assistance individuals must receive prior approval by emailing firstname.lastname@example.org or calling the HFM office at 410-661-2307 and then submitting a receipt for reimbursement to the HFM office within 60 days of purchasing MedicAlert.
Healthy Joints Initiative
HEMOPHILIA FOUNDATION OF MARYLAND - 2022 JOINT HEALTH INITIATIVE
It is important for individuals with bleeding disorders to participate in some form of physical activity. Being physically active helps to strengthen one’s muscles, bones, and joints. One of the many benefits of having a strong, healthy body can be a reduction in the number of joint bleeding episodes an individual might experience.
HFM’s 2022 Joint Health Initiative planning began by utilizing the Hemophilia Federation of America (HFM) research obtained by evaluating what the Blood Brotherhood and Families program male 2017 survey respondents knew about safe and effective physical activity and joint health. As a result, HFA developed educational resources to improve the HFA’s knowledge of safe physical activities for people with bleeding disorders. One of the educational resources included a library of videos on easy and safe physical exercises for different muscles to improve joint health and ways to modify those exercises during a bleeding episode. HFA also developed the “Best of You: Your Journey to Healthier Joints Challenge” to increase participation in safe physical activity and promote healthy joints.
WHAT WE LEARNED AND HOW
HFA collected information in 2017 surveys of men over 18 with hemophilia A, B, and von Willebrand who were participants in the Blood Brotherhood and Families programs. These surveys identified the participant’s knowledge and awareness regarding physical activity and joint health.
Our findings regarding joint health and safe physical activity knowledge are consistent across both Families and Blood Brotherhood program participants. If you would like to read more, here is a link to the full summary.
Blood Brothers are fairly educated on what are considered safe physical activities and the benefits of engaging in regular physical activities. However, 1 in 5 men still could not accurately identify safe physical activity or correctly identify the benefits of physical activity.
Most parents/caregivers appeared to be knowledgeable about safe physical activities and benefits to engaging in regular physical activities for their children. However, 1 in 4 parents/caregivers could not accurately identify safe physical activity or correctly identify the benefits of physical activity.
Thus, we learned that efforts are needed to increase knowledge and awareness so that close to 100% of men correctly identify safe physical activity and the benefits of physical activity regarding joint health.
The Hemophilia Foundation of Maryland 2022 Healthy Joint Initiative is a program that will utilize the research obtained by HFA to implement various fitness programs for patients with bleeding disorders. These programs will center around safe physical activities for patients with a bleeding disorder as well as education on the benefits of such activities. Lastly, the program will provide grant funding for bleeding disorder patients to enroll in physical activities such as swimming, yoga, golf, etc. (More details to follow).
We here at HFM are very excited about this initiative and look forward to bringing you more information as we implement this program. Stay tuned!