Policy & Advocacy
Advocacy is a key part of the mission of the Hemophilia Foundation of Maryland (HFM). HFM works to educate elected officials and other key stakeholders about hemophilia and other related inherited bleeding disorders. Every year HFM hosts our Advocacy Training and Maryland Days where constituents from around the state gather for training and meetings with their elected state officials to share their story and educate them about current issues affecting the hemophilia/bleeding disorders community. HFM also participates in the National Hemophilia Foundation’s annual Washington Days. This event provides an opportunity for constituents from across the nation to come together to learn about advocacy, discuss key issues impacting access to care, meet with elected officials, and put a face on hemophilia/bleeding disorders.
Advocacy happens every day and there are many ways to participate in advocacy activities throughout the year, including:
Writing letters to your elected officials regarding proposed changes to law or regulations
Meeting with other state decision-makers, including state departments of insurance and Medicaid agencies
Educating health plans about the needs of the bleeding disorders community
Educating schools and employers about the needs of the bleeding disorders community
Advocating to your health care provider about your unique health care needs
If you are interested in learning more about advocacy and becoming a better advocate, take a few moments to explore the tools and resources below.
Remember to check this page regularly for updates on advocacy issues and healthcare coverage.
You and your stories can help us make a difference!
HOW TO GET INVOLVED
JOIN OUR MOBILE ACTION NETWORK
Stay informed via text alert of the latest policy issues impacting patients and get connected to simple actions you can take to make a difference.
State & Federal Resources
If you are seeking information on advocacy at the federal level, visit the following websites:
The official website for US federal legislative information.
Centers for Disease Control and Prevention
(CDC) The CDC website has a wealth of information on public health and safety topics, emergency preparedness, environmental health, and healthy living. Use the CDC website for information useful for advocating for yourself and others.
The Food and Drug Administration
(FDA) The FDA website has a wealth of information, including a link on biologics. Like the CDC site, this page is useful for enhancing your knowledge base, especially if you’re advocating for access to the full range of products and services.