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Hemophilia Treatment Centers
A national network of more than 130 Hemophilia Treatment Centers (HTCs) is supported and funded by the Maternal and Child Health Bureau (MCHB) of the Health Resources and Services Administration (HRSA). HTCs are specialized healthcare centers staffed by a team of doctors, nurses, social workers, physical therapists and other health professionals with expertise in bleeding disorder treatment.
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WHAT IS COMPREHENSIVE CARE?
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Comprehensive care is coordinated health care for persons with inherited bleeding disorders through a family-centered approach by a multidisciplinary team. The team can include specially trained physicians, nurses, social workers, physical therapists, orthopedic surgeons, infectious disease specialists, dentists, genetic counselors, nutritionists, and educational consultants.
Comprehensive care focuses on the physical, emotional, social, educational, financial and workplace impact of bleeding disorders on the person and family. The comprehensive care team collaborates closely with the patient’s medical home (primary care provider) within their community.
Studies have shown that patients with inherited bleeding disorders who have their care coordinated through a comprehensive bleeding disorder center live longer and healthier lives than those who receive care from a hematologist alone.
The HFM & Johns Hopkins Hemophilia Treatment Center (HTC) Partnership
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Johns Hopkins Hospital in Baltimore is home to the only Hemophilia Treatment Center (HTC) in Maryland. At Johns Hopkins HTC, adult & pediatric patients with Hemophilia and/or other bleeding disorders are provided comprehensive treatment and management of their bleeding disorders by adult & pediatric Hematologists, physical therapists, HTC coordinator/nurse practitioners, and social workers. Maintaining and supporting this vital resource is fundamental to the mission of HFM.
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