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A Huge THANK YOU to our 2015 Platinum Website Sponsors!

Who We Are

"Making Life More Manageable for People with Bleeding Disorders"

The Hemophilia Foundation of Maryland (HFM) is a Nonprofit Organization, which devotes its efforts to improving the quality of life for persons affected with bleeding disorders and their complications. This mission is accomplished through outreach development, educational programs, informational literature, support services and patient referrals. HFM is a proud member of the Hemophilia Federation of America.


Former "Hole in the Wall Gang" Campers Reunite at National Hemophilia Foundation Annual Conference. Pictured above: Matthew, John Taylor, Matther, Harvey Sr., (camp chaperone), Spencer, Greg, Nick and Scott

HFM Community News

Be sure to check this section frequently as we bring you the latest and greatest happenings from within the Maryland bleeding disorder community. Have some news you want to share? Please email HFM at Miller8043@comcast.net. Want to subscribe to HFM's online newsletters and email list? Please visit the Newsletters page.



HFM is a host chapter for the following HFA programs:






HFM Fundraising

Foundation
Foundation
75%
Bull & Oyster Fundraiser
Bull & Oyster
60%
HFM 5K
HFM 5K
25%

Latest News!

Thank You 2014 HFM Family Weekend Sponsors!

Your support is most appreciated!!!

HFM events and programs would not be possible without the assistance of our sponsors.  So, if you enjoy attending HFM events, when selecting a homecare or specialty pharmacy, I encourage you to take notice of those who give back to the bleeding disorder community.  

Did you know HFM Membership is FREE?

There is no cost to become an HFM member, but membership is required to receive notification and attend upcoming events and programs.  Be sure to complete our online membership form below TODAY!

Click Here to Complete Our Online Membership Application

Important Advocacy Update – Thank You!!

House Bill 0761 Specialty Tier Drugs was signed into law by Governor O’Malley on May 5th, 2014.  
Thank you bill sponsors:  Delegate Peter Hammen and Senator Kathy Klausmeier. 
 
Hemophilia Foundation of Maryland is proud to announce HB761 – Specialty Tier Drugs was signed into law on May 5th, 2014 by Governor Martin O’Malley.  Congratulations to all who advocated and testified for the passage of this very important bill!  I could not be more proud of the Maryland bleeding disorder community.  This accomplishment is proof that a small group can make a difference.  Hemophilia Foundation of Maryland would like to thank the following people/organizations with whom we were fortunate to work alongside for the passage of this bill.  I realize I may have missed someone as so many of you were such a huge help! Please know that I am so grateful to all of you!!!
A Huge Thank You to:
Senator Kathy Klausmier/Senate Bill Sponsor
Delegate Peter Hammen/House Bill Sponsor
Ann Rogers/Delaware Valley Chapter National Hemophilia Foundation
Hemophilia Federation of America Advocacy Team
Mrs. Carletha Gates/Hemophilia Foundation of Maryland Advocacy Chair
Annette Maurits/HFM Board Member & Parent
William Hoffman/HFM Board Member & Parent
Vaughn Ripley/HFM Board Member/Hemophiliac
Chrissy Keene/Parent
Melissa Hurtt/Parent
John Gibson/The Leukemia & Lymphoma Society
Melissa Slizewski/National Multiple Sclerosis Society
Craig Gill/Pfizer Government Relations
Lori Simms/Baxter State Government Affairs
Thomas Larmondra/Baxter Advocacy
James Romano/PSI
And, finally to everyone and anyone who made a phone call, sent an email or wrote a letter in support of this Bill!
Best Regards,
Emma Miller, Executive Director
Carletha Gates, HFM Advocacy Chair

HFM Awards Educational Scholarships to Aspiring Students for the 2014-2015 School Year!

Education is Power and HFM proudly tries to support all who are interested in continuing their education.  CONGRATULATIONS to the following individuals who were awarded scholarships for the 2014-2015 school  year.

Students with a Bleeding Disorder:

  • Hassan Davis
  • Jay Hurtt
  • Roshan Dutta
  • Edgar Hutchinson, Jr.
  • Colin Wick
  • Matthew Gates
  • Brooks Hoffman
  • Cory Flens
Siblings of a Student with a Bleeding Disorder
  • Kyle Flens
  • Alexis Pullara
Children of a Person with a Bleeding Disorder
  • Janae Alston
Parent of a Child with a Bleeding Disorder
  • William Hoffman
  • Ashley McKinney
  • Natasha Burroughs

Emergency Room (ER) Form for Bleeding Disorders

An Emergency Information Form for Children with Special Health Needs is available to help parents explain their child’s complicated medical history when they must visit the emergency room.  The form was created by the American College of Emergency Physicians and the American Academy of Pediatrics.  The two organizations say that physicians, parents, EMS professionals and nurses will be able to use the form as a tool to transfer critical information.

The child’s physician or hemophilia treatment center staff fill out the medical information ahead of time, so the parent can hand ER staff the form when needed.  Parents are also encouraged to give copies of the form to all of their child’s caregivers.

For children registered with the MedicAlert Foundation, the organization can keep the form on file so healthcare professional can access it 24 hours a day.

click here for a copy of the ER form for bleeding disorders
Important Dental Information To Take With You to Your Next Dental Visit

With so much on our minds, it is quite easy to forget some information that may be very important to mention at your or your child’s next dental visit.  Baxter Healthcare created the linked form to make dental visits much easier!

Click Here for a copy of the dental information form

Upcoming Events

  1. Annual Meeting and Educational Dinner Night
    January 31 @ 6:00 pm - 9:00 pm
  2. Maryland Advocacy Days
    February 16 - February 17
  3. HFM Scholarship Workshop
    February 21 @ 11:00 am - 3:00 pm