Bleeding disorders know no bounds of race or gender. With modern treatment, people with bleeding disorders are learning to know life with less bounds too. They are living active, healthy lives unbound by disability. Read more about prophylaxis clotting factor replacement therapy in an article coming soon to this site.
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Our annual golf tournament will be held on September 28, 2009 at the Catail Creek Country Club in Glenwood Maryland. Cattail Creek is a beautiful course and every hole throughout the course's rural setting is unique. The day will end with a delicious buffet style dinner with a two hour open bar. Please click to view/print the flyer. Please register by contacting the chapter or using our online registration form.
WE DID IT!
HFM would like to thank all who participated in the Annual Walk for Hemophilia on Saturday, June 6, 2009. The weather was beautiful and the turnout was fantastic! Due to your participation, HFM is proud to announce the Walk for Hemophilia raised more than $15,000.00 and donations continue to arrive! HFM owes the success of this event to all of you who participated, whether by walking, mailing a donation, or spreading news of this great event.
A Very Special Thank You to Our Generous Event Sponsors:
Also, a special thank you to Mr. and Mrs. Bill Sullivan for assisting with the walk set-up, Mrs. Theresa Martin for hand making the gorgeous walk quilts, to Mrs. Evelyn Tezak for arriving at 5:00 a.m. to assist with the walk route set up, to the Merritt Athletic Club for providing a fitness trainer, to Mrs. Kathy Robinette Stoneberg and Mrs. Doris Roy for assisting with walk registration, to Ms. Lori Campbell for volunteering as our walk registered nurse, to Mr. and Mrs. Mike Gray and the Sons of the American Legion for their overall support of this event, to Mr. and Mrs. Shaun Nease for their online donation campaign, and last but not least, to all of our walk participants! We could not have done it without you.
People with hemophilia have been on a wild ride. Our parents were told we wouldn’t survive. We lived on hope and determination. As treatment improved, life got better, but the uncertainty persisted. In the 80’s a new threat emerged, and renewed our uncertainty. More new treatments, more hope, same determination. Today, the life expectancy for someone with hemophilia is roughly the same as anyone else. Hope and determination got us this far, but we’re now suddenly facing issues most of us are totally unprepared for, like co-infection, AARP membership, relating to Andy Rooney, and having children who are older than our doctor. Many guys with bleeding disorders have become disconnected from the community. They don’t go to treatment centers, and have trouble finding people who understand their problems. They need to connect with others who have been where they are—people who can share their experiences, suggest a coping skill, or just crack a joke. The Blood Brotherhood Program provides opportunities for men with bleeding disorders to get together both in person and online to discuss their issues with each other and with caring professionals. Our online forum covers everything from meds to motor sports, surviving to “Survivor.” To become a part of the Brotherhood please visit www.hfabb.org and join in our discussions and learn from our continually changing list of resources! As a new member, simply click “register” and you can begin to be a part of the Brotherhood. For additional resources and information and programs for the whole family, you can also contact the HFA directly through www.hemophiliafed.org
The Hemophilia Foundation of Maryland website has 2 platinum sponsors this year, Baxter Bioscience & MedPro Rx, Inc. Please click on their logos below to visit their websites. Thank you Baxter & MedPro Rx, Inc.!
Hemophilia Foundation of Maryland, Inc.13 Class Court, Suite 200Baltimore, Maryland 21234410-661-2307 • 800-964-3131Fax: 410-661-2308
Copyright ©2009 by the Hemophilia Foundation of Maryland This page last updated Monday, June 15, 2009 Site design by Ryan K. Nicolaisen Hosted by Page-Zone Web Hosting
